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Information Needs for People Living with Kidney Disease
Thank you for agreeing to participate in this survey from The Kidney Foundation of Canada. The survey's goal is to help identify the information needs of people living with kidney disease.
The survey results will be kept confidential and will be used to determine whether or not The Kidney Foundation of Canada is providing the information, tools and resources that people living with kidney disease need to understand and manage their disease. It will also be used to help identify which Kidney Foundation materials may need to be developed or improved.
Level of Need
Please tell us how much you need information about each of the areas listed below (level of need).
For example, if you feel a high level of need for information about the living donor program you would circle or check 4.
Level of Need:
1 = No need at all
4 = Very high level of need for me
1
2
3
4
Kidney disease in general
The Living Donor Program
Transplantation (living or deceased organ donation)
Complications that develop as a result of transplantation
Preventative care (to avoid or delay further loss of kidney function)
Other (often related) medical conditions such as high blood pressure and diabetes
Choosing not to start dialysis
Deciding to stop dialysis
Hemodialysis
Peritoneal dialysis
Home dialysis
Medications used to manage or treat kidney disease and its complications
Services available to me in my region
Palliative care / End of life care
Diet and nutrition
Coping strategies and stress management
Kidney injury
Sexuality
Exercise
Travel
Kidney disease, treatment and services in languages other than English or French
Advocating for yourself / addressing issues and challenges
Other, please specify:
